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Langerhans Cell Histiocytosis
(LCH)

We would like to share our story of Langerhans Cell
Histiocytosis with family and friends. Alex was officially
diagnosed with single system (bone only)
multi-focal (hip and shoulder) LCH
on September 15, 2005.

We have created this site to keep family and friends updated
on Alex and his journey through treatment. We also want to
share our story with other families who are fighting LCH.

I would love to hear from those of you who are checking
out our website. To contact us please use the following
email address: OurBuddyAlex@aol.com

We want to thank everyone for your love, prayers, and support.

JUST FOR THIS DAY

Just for this morning,
I am going to smile whenever I see your face,
and laugh when I feel like crying.

Just for this morning,
I will let you wake up softly, all rumpled in your flannel pyjamas,
and hold you until you are ready to stir.

Just for this morning,
I will let you choose what you want to wear,
and smile and say how beautiful you are.

Just for this morning,
I am going to step over the laundry to pick you up
and take you to the park to play.

Just for this morning,
I am going to eat a huge breakfast , with bacon, eggs,
toast and waffles, and you don't have to eat any.

Just for this morning,
I will leave the dishes in the sink, and let you teach me
how to put that 100 piece puzzle together.

Just for this afternoon,
I will unplug the telephone and keep the computer off
and sit with you in the garden blowing bubbles.

Just for this afternoon,
I will not yell once, not even a tiny grumble when you scream
and whine for the ice cream truck, and I will buy you one if he comes by.

Just for this afternoon,
I won't worry about what you are going to be when you grow up
or who you might have been before your diagnosis.

Just for this afternoon,
I will let you help me bake cookies,
and I won't stand over you trying to 'fix' things.

Just for this afternoon,
I will let you put all kinds of barrettes in my hair and lipstick on my face,
and I will tell you how pretty you have made me look.

Just for this afternoon,
I will take you to McDonalds and buy us both a Happy Meal,
so that you can have both toys.

Just for this evening,
I will hold you in my arms and tell you a story about how you were born,
and how much we love you.

Just for this evening,
I will let you splash in the bathtub and not get angry
when you throw water over your sister's head.

Just for this evening,
I will let you stay up late while we sit on
the porch swing and count all the stars.

Just for this evening,
I will bring you glasses of water, and snuggle beside you for three hours,
and miss my favorite show on TV.

Just for this evening,
When I kneel down to pray, I will simply be grateful for all that I have and not ask for anything.
Except just one more day.

~ Sally Meyer 1999 ~